So not it's February 2025
Just a vent...
My back problems started in 1991. That was the first time I threw out my back. I started doing it more and more until about ten years ago I could no longer twist, bend, sneeze or roll over in my sleep without "throwing out my back. I have gone to so many doctors, pain clinics, physical rehabs. I have had a nerve ablation and epidural. Both of those just made me worse. I have gone to several different chiropractors.
I constantly sublux my ribs and have sharp pain in between my shoulder blades. I have bulging/herniated discs in my upper back and lower back. Several of them. I have multiple meningiomas throughout my spine and arthritis and degenerative disc disease. I have an annular tear and high intensity zone at L5Si probably like everyone in this group.
I have bad reactions to most pain meds so I can't take them. Although doctors and the pain management place pushes them on me every time I go. I just react badly to them. And also it seems like the doctor just want to treat pain but doesn't seem to care about the weakness, pressure feeling and numbness that I experience in my legs and arms.
After thirty years of this pain I finally just called a spinal surgeon myself since my doctors and the pain clinic just refused to refer me. They asked me to do two "current" Mris of my back which I did. But they did my thoracic spine and lumbar, but didn't include the si joints or my ribs which is part of my pain too.
Anyways my regular doctors said she was referring me to a neuro surgeon in Madison, Wi cuz of the herniated discs and annular tear.
So I called the hospital to make sure they got them and she hadn't. So after awhile she called back and said she found them and the doctor will look at them in the next couple days and call me back.
Literally ten minutes later the receptionist called me back again and said ok the surgeon looked at your MRI and said he can't help you surgically. And hung up.
I feel hopeless. There is no hope. All I can do is lay in bed all day and night and just be in pain. How can a surgeon not meet with you? Is this normal? Did you meet with yours before surgery?
I have so much pain in my upper back, lower back, ribs, hips, pelvis, groin, knees to the bottom of my feet. If I stand for more than a minute I have numbness all through both legs. I have numbness in my arms and I cannot sit at all.
How is this life? And nobody cares.
Ok, rant over. I know you are all in pain too. I just wonder how everyone got help? And if anyone else has the problem of not being able to take pain meds without bad reactions.
Is there anything natural that works? I have tried CBD, infrared mats, biomats, earthing mats, tens machines, all kind of supplements, chiros, accu, massage. I am trying to meditate, trying to look within to figure out any trauma that might be unresolved, figure out how to heal from within, lots of different diets.
Is this Lyme? Is this EDS? Is this something else? Is it a spiritual thing? WTF is wrong with me? I see so many Lyme patients traveling and living life and my whole life is in bed.
A big part of me is giving up. I can feel it. There feels like t here is nowhere to trun. A lot of shows I watch say you have to find the answer within yourself. I can't figure out how to do that. All I know if I lay here day after day getting weaker and stiffer. I dream about pain, I feel it all day and all night, I can't bend, twist, breath deeply, roll over in my sleep or lift anything. But if I try any meds they make me feel sicker and never take away the pain.
Sorry I know this post is not uplifting, but I'm a realist. And this is my reality.
God, please help me and all that are suffering in this world. There is too much suffering.
