I want to vent a little. Sometimes when Im reading other posts in my support group, or talking to someone, they will tell me the things they have been diagnosed with. And then they tell me the tests their doctor ordered to figure it out. I have gone to over 100 doctors in several different states. Not one has ever done anything more then an MRI.. and now with my back problems I cant even get that. Is it because im on Medicaire or Medicaid?
I dont understand why my doctors just keep ignoring me as my issues grow? Its like they just label me with panic attacks and move on. Even when i went for over 15 years for my right arm going numb, noone would do anything other then tell me I was hyperventilating.
Eventually after 15 years a neurologist ordered and EMG test which showed nerve damage from my neck down to my right hand which is stemming from pinched nerves because of three bulging disks in my neck. And still even after that test, no dr even followed up on the bulging disks or on a cyst on my thyroid that was reported on on the MRI. They didnt even tell me, I only know cuz I got copies of the tests. When I asked the dr if I should be worried about the cyst on my thyroid she commented, "it depends." then turned around and started typing on her computer. How are they so cocky? "It depends" is not an answer!!
I have changed doctors again and again but have NEVER found one that will do anything outisde a basic xray or basic blood test. Im getting back to bedbound. What do you all do to get your doctors to perform tests? How do you get them to send you to specialists? It seems like mine just want to get me out of the office and then do nothing further. I feel like Lyme is just going to turn into ALS and that will be the way that I'll die. Because all I can do is lay here. Waiting to die.
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